Emerging from the 3 months of extra energy demands … in July we hoped for an energy rebound and to emerge refreshed and ready to enjoy the summer with our usual annual visits to our favourite spots both inland and along the coast. But I had forgotten just how long it can take for ‘recovery’ with ME/PVS.
So July was a struggle to recover any energy at all.
The biggest impact on my health and energy levels is always STRESS and this year stress has been all around me.
For as long as I have had ME/PVS I have tried to ignore external stresses, as they can be the most damaging, as chances are that I can’t do anything about them. So a somewhat selfish, blinkered approach to the wider world has proved therapeutic for me! Not what I want … as I studied politics, economics, sociology and social philosophy at university back in the day! But I live as carefully and patiently as I can with ‘Post Viral Syndrome’. Stress is the most difficult problem to control – I can stop myself from overexertion, work to improve my sleep pattern, make sure I eat wisely and take my essential NADH. But external stresses can be like trying to catch the mist in your hand!
Incidentally I see Long Covid as just the latest Post Viral Syndrome, and maybe the one that will wake people up to the wider picture!
This entire year has seen a steady increase in stressors – levels of Covid infection with Omicron running unchecked – the war in Ukraine – Spring and summer droughts that are getting worse each year – spiralling inflation with food, petrol, and energy costs increasing. And as the summer continues we are promised heatwaves, wildfires and water shortages.
So my focus has been on the smallest of things! The world of home and garden, and of course, expressed through photography.
Bringing in flowers from the garden to shoot together with my collection of miniature Japanese vases is a way to celebrate the joys of having a good size garden.
The potentillas are all colours, and form colourful hedges throughout the whole garden. These are mainly hardy Abbotswood, and seem to thrive even in our cold northern climate.
And the miniature vases I have collected are beautiful hand-thrown, glazed gems by Yuta Segawa . I have an album of photos using these vases on my Flickr site here
More potentilla, this time edging a path, and also softening the lines of the small walls that divide the front garden into 3 layers. They flower well into autumn.
A great delights this year is the addition of a white fuchsia bush. I’ve tried for years to grow fuchsias and failed, but this hardy Hawkshead variety has withstood frost, heat and drought! Here with a Yuta Segawa vase.
It may seem silly, but you really start to appreciate simple grass when the drought begins to bite! Luckily we have had enough nights with mist and morning dew to keep most of our grass green!
The entire summer in the garden has been dominated by the drought. Not as severe as in parts of England, but our local river, the Ythan, has been flagged as in danger. Farmers have been warned about taking water from it for irrigation. No hosepipe ban, but we have a routine for collecting any useable water from indoors into buckets and using it to water plants and planters. As long as it doesn’t have detergents, soap etc. we can use it! Yes, it takes time and patience, but it has helped the garden to survive thus far!
And indoors, with my cameras?
Well, anything and everything that catches my eye.
I use Flickr challenges to keep me looking for interesting ways to shoot the daily events and things around me.
I frequently shoot with macro lenses, and they can give an interesting perspective on even the most mundane of items! Add a little sunshine and a reflective surface …
And yes, I do still sometimes buy flowers from the supermarket. But as the inflationary spiral continues, it is an occasional indulgence. I admit that gladioli are one of my weaknesses! They are so amazing …
But a dried hydrangea flower found under a bush can make a wonderful macro subject! Again with added sunshine and cast shadows … just as beautiful as when it was ‘alive’.
And of course I never stop shooting the landscape. We have wonderful skies, and I can capture both sunrise and sunsets even though we are in the howe (valley) of the Ythan.
Here I played with a sunset shot, using Photoshop (yes – post-processing is a vital part of digital photography!) Transforming the sky with imaginary colours of the aurora borealis. Great fun!
But to end on a more serious note. I was thinking about the stresses of not just this month of July. A very personal stressor for me has been the supply of my essential ME. ‘medication’. In recent months supplies of the NADH dried up, and I could not find supplies anywhere.
It is an enzyme that affects every cell in the body, enabling the ‘food’ to cross the cell wall from the blood stream, so the cells can work as normal. Without this enzyme my body can’t operate, and my energy vanishes, and I return to the early ‘hell’ of barely being able to lift my head off the pillow, and not being able to think, or digest my food. It is quite simply my lifeline!
Years ago I found out about NADH and have supplies of the one product that works for me. There are others on the market, but after trying one, and coming dangerously close to a relapse I have stuck with my trusty MoJo ….
This sudden drying up of MoJo supplies left me in a panic – I had to try and find an alternative! The only way to discover if a brand will work for me is to stop using my MoJo completely and replace it with the new one … for an entire week. By then I will either feel OK or crash completely into the beginning of a relapse. A dangerous tightrope to walk!
Through June and July I tried out 3 products that I can source in the UK. The first 2 proved to be good, and could give me energy close to my MoJo. As July started I was testing out the third one – and by day 5 of the trial I was struggling to get out of bed in the morning. So I stopped, and returned to my dwindling supplies of the MoJo!
It meant that the first half of July I was feeling very low and struggling to get back to my ‘normal’ equilibrium. I had to rest a whole lot, I found my hands were shaky so I couldn’t hold a paintbrush, or use a camera without a tripod. I had to monitor food, only eating easily digestible food, and in small quantities – too much and I break out into a cold sweat, and must lie down until my body can digest the food. Loud music, or bright lights on the TV screen were both painful …. it was a salutary reminder of what ME had originally done to my life – eating up whole decades!
[see the page on “ME and me” here. Although written a few years ago, it is still true today! ]
So on to August ……. and it gets really hot!
Flickr holds Elisa’s online Photo Gallery
© 2022 Elisa Liddell